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SB 7 (BR 136) - J. Adams, C. Embry Jr., D. Harper Angel, D. Parrett

     AN ACT establishing the Kentucky Rare Disease Advisory Council and making an appropriation therefor.
     Create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council; list members to be appointed by the Governor; state the duties of the council; require a report of council activities; create a rare disease trust fund to be administered by the Cabinet for Health and Family Services to finance the operation of the council and support rare disease research and treatment; require a report on expenditures from the fund; require the council to cease to exist on December 1, 2028, unless otherwise reestablished by the General Assembly.


AMENDMENTS

     SCS1 - Retain original bill; amend KRS 79.080 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; amend KRS 200.480 to require the Commission for Children with Special Health Care Needs to report upon request; amend KRS 216.577 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; amend KRS 216.935 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; repeal KRS 194A.090, 211.665, and 211.674.
     SCA1( J. Adams ) - Make title amendment.

     Dec 01, 2017 - Prefiled by the sponsor(s).
     Jan 02, 2018 - introduced in Senate
     Jan 03, 2018 - to Health & Welfare (S)
     Jan 08, 2018 - taken from Health & Welfare (S); 1st reading; returned to Health & Welfare (S)
     Jan 09, 2018 - taken from Health & Welfare (S); 2nd reading; returned to Health & Welfare (S)
     Jan 10, 2018 - reported favorably, to Rules with committee amendments (1-title) Committee Substitute (1); posted for passage in the Regular Orders of the Day for Thursday, January 11, 2018
     Jan 11, 2018 - 3rd reading, passed 32-0 with Committee Substitutes (1) committee amendment (1-title)
     Jan 16, 2018 - received in House
     Jan 18, 2018 - to Health and Family Services (H)
     Mar 13, 2018 - posted in committee
     Mar 15, 2018 - reported favorably, 1st reading, to Consent Calendar
     Mar 16, 2018 - 2nd reading, to Rules
     Mar 19, 2018 - posted for passage in the Consent Orders of the Day for Tuesday, March 20, 2018
     Mar 20, 2018 - 3rd reading, passed 97-0
     Mar 21, 2018 - received in Senate; enrolled, signed by President of the Senate; enrolled, signed by Speaker of the House; delivered to Governor
     Apr 02, 2018 - vetoed