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Senate Bill 7

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Last Action	Vetoed
Title	AN ACT establishing the Kentucky Rare Disease Advisory Council and making an appropriation therefor.
Bill Documents	Current/Final Introduced
Bill Request Number	136
Sponsors	J. Adams, C. Embry Jr., D. Harper Angel, D. Parrett
Summary of Original Version	Create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council; list members to be appointed by the Governor; state the duties of the council; require a report of council activities; create a rare disease trust fund to be administered by the Cabinet for Health and Family Services to finance the operation of the council and support rare disease research and treatment; require a report on expenditures from the fund; require the council to cease to exist on December 1, 2028, unless otherwise reestablished by the General Assembly.
Index Headings of Original Version	Diseases - Rare disease advisory council, establish Health and Medical Services - Rare disease advisory council, establish Hospitals and Nursing Homes - Rare disease advisory council, establish Physicians and Practitioners - Rare disease advisory council, establish Public Health - Rare disease advisory council, establish Appropriations - Rare disease trust fund, create Reports Mandated - Rare disease advisory council, establish
Proposed Amendments	Senate Committee Substitute 1 Senate Committee Amendment 1
Votes	Vote History
Governor's Veto Message	Veto

Actions

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12/01/17	Prefiled by the sponsor(s).
01/02/18	introduced in Senate
01/03/18	to Health & Welfare (S)
01/08/18	taken from Health & Welfare (S) 1st reading returned to Health & Welfare (S)
01/09/18	taken from Health & Welfare (S) 2nd reading returned to Health & Welfare (S)
01/10/18	reported favorably, to Rules with committee amendments (1-title) Committee Substitute (1) posted for passage in the Regular Orders of the Day for Thursday, January 11, 2018
01/11/18	3rd reading, passed 32-0 with Committee Substitutes (1) committee amendment (1-title)
01/16/18	received in House
01/18/18	to Health and Family Services (H)
03/13/18	posted in committee
03/15/18	reported favorably, 1st reading, to Consent Calendar
03/16/18	2nd reading, to Rules
03/19/18	posted for passage in the Consent Orders of the Day for Tuesday, March 20, 2018
03/20/18	3rd reading, passed 97-0
03/21/18	received in Senate enrolled, signed by President of the Senate enrolled, signed by Speaker of the House delivered to Governor
04/02/18	Vetoed

Proposed Amendments

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Amendment	Senate Committee Substitute 1
Summary	Retain original bill; amend KRS 79.080 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; amend KRS 200.480 to require the Commission for Children with Special Health Care Needs to report upon request; amend KRS 216.577 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; amend KRS 216.935 to change the Kentucky Health Facilities and Health Services Certificate of Need and Licensure Board to the Cabinet for Health and Family Services; repeal KRS 194A.090, 211.665, and 211.674.
Index Headings	Diseases - Rare disease advisory council, establish Health and Medical Services - Rare disease advisory council, establish Hospitals and Nursing Homes - Rare disease advisory council, establish Physicians and Practitioners - Rare disease advisory council, establish Public Health - Rare disease advisory council, establish Appropriations - Rare disease trust fund, create Reports Mandated - Rare disease advisory council, establish

Amendment	Senate Committee Amendment 1
Sponsor	J. Adams
Summary	Make title amendment.
Index Headings	Diseases - Rare disease advisory council, establish Health and Medical Services - Rare disease advisory council, establish Hospitals and Nursing Homes - Rare disease advisory council, establish Physicians and Practitioners - Rare disease advisory council, establish Public Health - Rare disease advisory council, establish Appropriations - Rare disease trust fund, create Reports Mandated - Rare disease advisory council, establish

Last updated: 1/16/2019 3:00 PM (EST)