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Senate Bill 16

Actions | Amendments
Last Action 03/19/19: signed by Governor (KY Acts ch. 032)
Title AN ACT establishing the Kentucky Rare Disease Advisory Council and making an appropriation therefor.
Bill Documents Acts Chapter 32
Current/Final
Introduced
Bill Request Number 45
Sponsors J. Adams, C. Embry Jr.
Summary of Original Version Create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council; list members to be appointed by the Governor; state the duties of the council; require a report of council activities; create a rare disease trust fund to be administered by the Cabinet for Health and Family Services to finance the operation of the council and support rare disease research and treatment; require a report on expenditures from the fund; provide that the council shall to cease to exist on December 1, 2029, unless reestablished by the General Assembly.
Index Headings of Original Version Diseases - Rare Disease Advisory Council, establishing
Health and Medical Services - Rare Disease Advisory Council, establishing
Hospitals and Nursing Homes - Rare Disease Advisory Council, establishing
Physicians and Practitioners - Rare Disease Advisory Council, establishing
Public Health - Rare Disease Advisory Council, establishing
Appropriations - Rare disease trust fund, creating
Reports Mandated - Rare Disease Advisory Council and General Assembly, annual reports to
Jump to Proposed Amendments Senate Floor Amendment 1
Votes Vote History

Actions

Top | Amendments
08/21/18
  • Prefiled by the sponsor(s).
01/08/19
  • introduced in Senate
  • to Health & Welfare (S)
02/13/19
  • reported favorably, 1st reading, to Calendar
02/14/19
  • 2nd reading, to Rules
  • floor amendment (1) filed
02/15/19
  • posted for passage in the Regular Orders of the Day for Tuesday, February 19, 2019
02/19/19
  • 3rd reading, passed 36-0 with floor amendment (1)
02/20/19
  • received in House
02/21/19
  • to Health and Family Services (H)
02/28/19
  • posted in committee
03/04/19
  • reported favorably, 1st reading, to Consent Calendar
03/05/19
  • 2nd reading, to Rules
03/06/19
  • posted for passage in the Consent Orders of the Day for Thursday, March 7, 2019
03/07/19
  • 3rd reading, passed 99-0
  • received in Senate
  • enrolled, signed by President of the Senate
  • enrolled, signed by Speaker of the House
  • delivered to Governor
03/19/19
  • signed by Governor (KY Acts ch. 032)

Proposed Amendments

Top | Actions
Amendment Senate Floor Amendment 1
Sponsor J. Adams
Summary Delete provisions of the bill; insert new language to create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council to be administered by an existing nonprofit entity operating in the state; establish duties of the council; permit the council to apply for grant; require reports to the Governor, the Cabinet for Health and Family Services, and the General Assembly; provide that the council shall to cease to exist on December 1, 2028, unless reestablished by the General Assembly.
Index Headings Diseases - Rare Disease Advisory Council, establishment of
Health and Medical Services - Rare Disease Advisory Council, establishment of
Hospitals and Nursing Homes - Rare Disease Advisory Council, establishment of
Physicians and Practitioners - Rare Disease Advisory Council, establishment of
Public Health - Rare Disease Advisory Council, establishment of
Reports Mandated - Rare Disease Advisory Council, annual reports to

Last updated: 11/9/2023 3:07 PM (EST)